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Welcome

Since 1991, The Gauchers Association has been active in promoting awareness and research, providing general and specific information - including keeping our members up-to-date on the latest research developments, and perhaps most importantly, establishing a support network for those affected by Gaucher disease.

Most of our members are in the UK and Ireland and we are a registered charity that relies solely on fundraising and by voluntary donations. The Association aims to:

  • Provide information about Gaucher disease and keep families and medical advisers up to date with the latest developments.
  • Encourage the availability of treatment including enzyme replacement therapy.
  • Keep families in touch for support.
  • Actively promote medical research into Gaucher disease.

To find out more click here

Tanya's Running ther London Marathon: click here to link to my fundraising

Cerezyme Supply Update:

For an update on the supply of Cerezyme click here

Volunteers needed for Oral Therapy Trial for Type 1 Gaucher disease - click here for further information Please contact us at the Gauchers Association if you would like further information.

 
 

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