Welcome

Members Conference 2010: Choices and Challenges for the Gaucher Community.

Sunday 13th June at the Royal Free Hospital in London, from 10am to 4pm

Click here for the programme

Click here for a registration form

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Latest Cerezyme Update - 17th February 2010:

Due to several factors including to improve manufacturing quality systems and perform preventative maintenance and upgrades at the Allston plant, it has been announced that current supply of Cerezyme is less than originally anticipated.

To more consistently manage the resupply of Cerezyme to patients in approximately 100 countries and reduce the interruptions in shipping that occur in the absence of inventory, Genzyme will work to immediately build a small inventory buffer. This buffer will allow a more predictable schedule for Cerezyme delivery through the remainder of 2010 and help avoid the challenges many physicians and patients have experienced in scheduling infusions. To build this inventory buffer, the company will ship 50 percent of demand for an eight-week period beginning the week of February 22, 2010.

Genzyme is working closely with physicians and patient organizations to manage this temporary initiative.

We encourage you to discuss any concerns you may have with your doctor at your treating centre.

Call us on 01453 549231 if you are worried or have any further questions

Cerezyme Shortage 2009: For information on the Cerezyme Shortage 2009 please click here