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Promoting awareness, pioneering research and providing support and information for those affected by Gaucher disease.


Telephone: 01453 549231

Neuronopathic Gaucher Disease Meeting 2017

We are pleased to announce the neuronopathic Gaucher disease meeting will take place on 17th-20th November 2017 at Centre Parcs, Woburn, Bedfordshire.  This event is open to patients, families, healthcare professionals, the pharmaceutical industry and Homecare representatives.

As always the conference will be packed with some important and interesting presentations, including topics such as updates on the latest research, potential new therapies, genetic modifiers, education, benefits and some very heartfelt, personal stories told by patients, families and many people directly affected by Gaucher disease along with a full children's activity program for the under 16's with our fantastic volunteers, all of whom are fully DBS checked.

Costs are as follows:

Family (up to two adults and three children) £150

Single family member £50

Gaucher patient (over 18 years) £50

Pharmaceutical and Homecare representative (Saturday only) £150


Booking forms can be downloaded below


Click here to download the program of event for this meeting 

This meeting has been sponsored by the following with unrestricted grants