Gaucher Association Logo

Promoting awareness, pioneering research and providing support and information for those affected by Gaucher disease.


Telephone: 01453 549231

In the News

  • How do you want to hear from us?

    6 April 2018

    Due to changes in data protection legislation, soon The Gauchers Association won’t be able to contact you about any of our services or activities unless you explicitly give your consent.

    In other words, if you would like to …

    read more »

  • Bank Holiday office hours

    29 March 2018

    The Gauchers Association office will be closed from Thursday 29th March at 4.30pm and will re-open on Tuesday 3rd April at 9.00am for the bank holiday weekend.  We will respond to any messages upon our return.

  • Gift Aid it!

    19 March 2018

    People giving to charity are being encouraged by the government to declare Gift Aid on their donations, and boost the money that reaches their charity of choice at no extra cost.

    The call comes after research showed that charities are losing …

    read more »

  • London to Cambridge Bike Ride 2018

    23 February 2018

    We are very pleased to announce online registration is now open for our London to Cambridge charity bike ride on Sunday 16th September.  Numbers are limited so secure your place early!

    Click here to register online NOW!

  • February 2018 News Bulletin

    2 February 2018

    Our February news bulletin should have now landed in your inbox and is also available to download from our website

    if you have not received your copy may I please ask you check your Junk/Spam folder and ensure to make a safe sender, …

    read more »

  • Season's Greetings 2017

    15 December 2017

    The Gauchers Association would like to wish all our members, families, friends and collaborative partners Seasonal Greetings and thank you to everybody for their support throughout 2017 and we look forward to lots of exciting and challenging …

    read more »

  • Scottish Medicines Agency (SMC) says 'YES'

    11 December 2017

    Today, the SMC announced that Cerdelga is recommended within its marketing authorisation for treating type I Gaucher disease, that is, for long-term treatment in adults who are cytochrome CYP2D6 poor, intermediate or extensive metabolisers. This …

    read more »

  • Access to Medicines in NHS Wales

    11 December 2017

    All Wales Therapeutics & Toxicology Centre (AWTTC) have produced a patient information video to help people understand how medicines can be accessed in NHS Wales, and the role of AWTTC in supporting this. The video is available on the …

    read more »

  • Trustees Week 17th November

    17 November 2017

    Thank you to our trustees

    On behalf of the whole Gaucher community I should like to end Trustees Week by saying a HUGE thank you to all our wonderfully dedicated trustees.  Our Trustees play a vital role, volunteering their time and …

    read more »

  • Trustees Week 16th November

    16 November 2017

    I was diagnosed with Gaucher Disease when I was 26. Like most newly diagnosed patients my initial emotions were fear and apprehension and I focused my mind on the infusions I was now to have every two weeks and my regular hospital check ups.

    read more »