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Promoting awareness, pioneering research and providing support and information for those affected by Gaucher disease.


Telephone: 01453 549231

In the News

  • PRESS RELEASE - NICE and NHS England

    28 March 2017

    In late October 2016 NHS England and NICE launched a 12-week consultation on changes to the arrangements for evaluating and funding drugs and other health technologies appraised through NICE’s Highly Specialised Technologies (HST) …

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  • Clinical Trial for Gaucher Disease Type 3

    21 February 2017

    Sanofi Genzyme is investigating an orally administered substrate reduction therapy in Gaucher disease type 3 as part of the 2-part LEAP clinical research study.

    The first part of the LEAP study will measure and compare certain factors in …

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  • Gauchers Association charity cycle ride 2017

    17 February 2017

    Back by popular demand with a brand new revised 60 (or 40) mile cicular route.

    Sunday 21st May 2017 - Online registration NOW OPEN! 

    Register early to guarantee your place  Why not invite your friends to take part too?

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  • Clinical Trial ALERT!!!

    3 January 2017

    Genzyme, a Sanofi Company have launched a phase 2 clinical trial in adults (18 years and older) with Type 3 Gaucher disease. This 52-week two-part study is currently open and recruiting patients in the UK and the US.

    To be eligible for this …

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  • Season's Greetings 2016

    16 December 2016

    The Gauchers Association would like to take this opportunity to wish all our members, families, friends and all our collaborative partners Seasonal Greetings and best wishes for the New Year.

    We should like to inform you that the office will …

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  • Gauchers Association UK Members Survey

    14 October 2016

    We would like to invite you to complete a short online survey to tell us what you think about the work of the UK Gauchers Association.

    This piece of research is being conducted by us to further understand the needs of the Gaucher community …

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  • 25th Anniversary Dinner

    10 October 2016

    Save the Date - 5th November 2016
    This year is the 25th Anniverasary of the Gauchers Association and to celebrate this momentous occastion we are planning a special celebration for all our members, colleagues and friends.

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  • Donate your first new £5 note!

    29 September 2016

    The new £5 note has been launched, this has inspired people to donate the first one they receive to charity. To donate your first £5 to the Gauchers Association click on the donate button on our homepage #firstfiver

  • Gauchers News July 2016

    15 July 2016

    Please see the Gauchers Summer newsletter is now available to read and download from our website!

  • Ride London 2016

    17 May 2016

    We only have ONE place remaining for Ride London on Sunday 31st July 2016.  This fantastic 100 mile route all on closed roads through the capital and Surrey's beautiful countryside, with some leg-testing climbs along the way, finishing …

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