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Promoting awareness, pioneering research and providing support and information for those affected by Gaucher disease.


Telephone: 01453 549231

In the News

  • International Gaucher Day 2018

    25 September 2018

    International Gaucher Day was launched by the EGA in 2014 and is celebrated annually on 1st October to raise awareness of Gaucher disease.

    The theme for 2018 is Rare Stars, we will be sharing some videos of Rare Stars throughout the lead up …

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  • The Vitality Big Half Marathon 2019

    2 August 2018

    We have successfully secured 5 charity places for the Vitality Big Half Marathon on Sunday 10th March 2019.  This half marathon was first held in 2018 with over 15,000 runners taking part the inaugural event winner being Sir Mo Farah!

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  • Family Fun Weekend 2018

    17 July 2018

    If you have a child with Gaucher disease aged 18 or under and live in the UK, we would love you to come to our family fun weekend being held on 6th and 7th October 2018.This is a FREE event. Please click here for more information.

  • The Gauchers Association appoints new Chief Executive

    17 July 2018

    Following the announcement that Tanya Collin-Histed has stepped down from her role with the Gauchers Association to take up a full time role with the EGA, the Association is delighted to confirm the appointment of Jane Jones as our new Chief …

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  • Tanya Collin-Histed to move to the EGA full time

    26 April 2018

    During her time as Chief Executive of the Gauchers Association the Charity has grown in size, stature and profile and its impact on the Gaucher Community in the UK has been significant. Her support for all patients with rare diseases and …

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  • London Marathon 2018 update

    23 April 2018

    A massive thank you and congratulations to our amazing runners, Chris, Paul, Matt & Lucy who all completed the London Marathon yesterday, what a day! WELL DONE TO YOU ALL #spiritofLondon

    If you supported our runnners this year, thank …

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  • How do you want to hear from us?

    6 April 2018

    Due to changes in data protection legislation, soon The Gauchers Association won’t be able to contact you about any of our services or activities unless you explicitly give your consent.

    In other words, if you would like to …

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  • Bank Holiday office hours

    29 March 2018

    The Gauchers Association office will be closed from Thursday 29th March at 4.30pm and will re-open on Tuesday 3rd April at 9.00am for the bank holiday weekend.  We will respond to any messages upon our return.

  • Gift Aid it!

    19 March 2018

    People giving to charity are being encouraged by the government to declare Gift Aid on their donations, and boost the money that reaches their charity of choice at no extra cost.

    The call comes after research showed that charities are losing …

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  • London to Cambridge Bike Ride 2018

    23 February 2018

    We are very pleased to announce online registration is now open for our London to Cambridge charity bike ride on Sunday 16th September.  Numbers are limited so secure your place early!

    Click here to register online NOW!