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Promoting awareness, pioneering research and providing support and information for those affected by Gaucher disease.

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Telephone: 01453 549231
Email: ga@gaucher.org.uk

In the News

  • Tanya Collin-Histed to move to the EGA full time

    26 April 2018

    During her time as Chief Executive of the Gauchers Association the Charity has grown in size, stature and profile and its impact on the Gaucher Community in the UK has been significant. Her support for all patients with rare diseases and …

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  • London Marathon 2018 update

    23 April 2018

    A massive thank you and congratulations to our amazing runners, Chris, Paul, Matt & Lucy who all completed the London Marathon yesterday, what a day! WELL DONE TO YOU ALL #spiritofLondon

    If you supported our runnners this year, thank …

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  • How do you want to hear from us?

    6 April 2018

    Due to changes in data protection legislation, soon The Gauchers Association won’t be able to contact you about any of our services or activities unless you explicitly give your consent.

    In other words, if you would like to …

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  • Bank Holiday office hours

    29 March 2018

    The Gauchers Association office will be closed from Thursday 29th March at 4.30pm and will re-open on Tuesday 3rd April at 9.00am for the bank holiday weekend.  We will respond to any messages upon our return.

  • Gift Aid it!

    19 March 2018

    People giving to charity are being encouraged by the government to declare Gift Aid on their donations, and boost the money that reaches their charity of choice at no extra cost.

    The call comes after research showed that charities are losing …

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  • London to Cambridge Bike Ride 2018

    23 February 2018

    We are very pleased to announce online registration is now open for our London to Cambridge charity bike ride on Sunday 16th September.  Numbers are limited so secure your place early!

    Click here to register online NOW!

  • February 2018 News Bulletin

    2 February 2018

    Our February news bulletin should have now landed in your inbox and is also available to download from our website

    if you have not received your copy may I please ask you check your Junk/Spam folder and ensure to make a safe sender, …

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  • Season's Greetings 2017

    15 December 2017

    The Gauchers Association would like to wish all our members, families, friends and collaborative partners Seasonal Greetings and thank you to everybody for their support throughout 2017 and we look forward to lots of exciting and challenging …

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  • Scottish Medicines Agency (SMC) says 'YES'

    11 December 2017

    Today, the SMC announced that Cerdelga is recommended within its marketing authorisation for treating type I Gaucher disease, that is, for long-term treatment in adults who are cytochrome CYP2D6 poor, intermediate or extensive metabolisers. This …

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  • Access to Medicines in NHS Wales

    11 December 2017

    All Wales Therapeutics & Toxicology Centre (AWTTC) have produced a patient information video to help people understand how medicines can be accessed in NHS Wales, and the role of AWTTC in supporting this. The video is available on the …

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