Gaucher Association Logo

Promoting awareness, pioneering research and providing support and information for those affected by Gaucher disease.


Telephone: 01453 549231

Patient & Family Support Worker

My name is Helen Whitehead and I am the Patient and Family Support Worker for the Gauchers Association.  I am here to help with any unmet support needs (non-medical).  I can support you with a whole range of issues.  Examples are guiding you through benefit applications (for example Personal Independence Payment (PIP), Disability Living Allowance (DLA), attending appointments, accessing home adaptations, liaising with homecare teams, appeals for schools, getting support at college. 


Please click on the headings below to download our information fact sheets.

Attendance Allowance 

Carers Allowance

Disability Living Allowance - Children DLA

Employment Support Allowance - ESA

Health Costs

Personal Independence Payment - PIP

Special Educational Needs

Travel Insurance

Universal Credit

Please contact our Helen Whitehead our Patient & Family Support worker on: or by phone on 01453 549231 / mobile: 07795 192311