Gaucher Association Logo

Promoting awareness, pioneering research and providing support and information for those affected by Gaucher disease.


Telephone: 01453 549231

In the News

  • Breaking News - UK Gauchers Association granted a positive opinion for orphan designation for Gene Therapy for Gaucher Disease

    27 February 2015

    The UK Gauchers Association is delighted to announce that on 12 February 2015 the Committee for Orphan Medicinal Products (COMP) at the European Medicine Agency (EMA) granted a positive opinion for orphan designation (EMA/OD/303/14) to the

    read more »

  • Rare Disease Day 2015

    13 February 2015

    Rare Disease Day 2015 is on 28th February. This is a day to raise awareness among the general public and decision makers about rare diseases and their impact. If you would like to get involved check out Global Genes social media suggestions

    read more »

  • Prudential Ride London

    5 February 2015

    Have you been unsuccessful in this year's ballot for the Prudential Ride London?  We have spaces available, why not be part of team Gaucher on Sunday 2nd August!  If you are interested please contact Sarah on

    read more »

  • 2015 Golf Day

    30 January 2015

    The Gauchers Association are pleased to announce they will once again be hosting their fabulous golf day on Wednesday 20th May 2015 at Dyrham Park Country Club.

    The day will start at 8.30 with form of play being Alliance Stableford (Shotgun …

    read more »

  • European Commission grants marketing approval for Cerdelga (Eliglustat) capsules

    26 January 2015

    The Gauchers Association are pleased to announce that the European Commission (EC) has granted marketing approval for Cerdelga (Eliglustat) capsules, an oral therapy indicated in the European Union for the long term treatment of adult patients …

    read more »

  • Seasonal Greetings

    19 December 2014

    The Gauchers Association would like to take this opportunity to wish all our members, families, friends and all our collaborative partners Seasonal Greetings and best wishes for the New Year.

    We should like to inform you that the office will …

    read more »

  • Alan Gordon Memorial Award 2015

    5 December 2014

    The Association is now inviting nominations for the 8th Alan Gordon Memorial Award.  If you feel someone, whether a doctor, researcher, professional or layman, or a particular group of people warrants recognition please submit your …

    read more »

  • Great North Run 2015

    31 October 2014

    The Association is pleased to announce they have secured 5 Golden Bond places for the 2015 Great North Run on Sunday 13th September starting in Newcastle and finishing in South Shields.  If you are interested in taking part in this iconic …

    read more »

  • Expression of Hope III

    17 September 2014

    Genzyme a Sanofi company have recently announced the launch of their “Expression of Hope III” Program to Build Awareness of Lysosomal Storage Disorders Through Works of Art

    Click below for more information on this exciting program

    read more »

  • Cerdelga update

    17 September 2014

    Following the Food and Drug Administration (FDA) approval of Cerdelga as an oral treatment for certain adult Gaucher disease type 1 patients in August, press reports suggest that Genzyme has set a price for the US patients at $310,250 a year, see …

    read more »