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Promoting awareness, pioneering research and providing support and information for those affected by Gaucher disease.

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Telephone: 01453 549231
Email: ga@gaucher.org.uk

In the News

  • London to Cambridge Bike Ride 2014

    22 August 2014

    Only 2 weeks to go before the Gauchers Charity Bike Ride on Sunday 7th September 2014

    You still have time to register, Click now on the following link to do this
    https://www.sientries.co.uk/event.php?event_id=1349

    Don’t forget to …

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  • FDA Approves Genzyme's Cerdelga (eliglustat) capsules

    20 August 2014

    Genzyme, a Sanofi company (EURONEXT: SAN and NYSE: SNY), announced today that the U.S. Food and Drug Administration (FDA) has approved Cerdelga™ (eliglustat) capsules, the only first-line oral therapy for certain adult Gaucher disease …

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  • London to Cambridge Bike Ride

    11 August 2014

    You may be aware the Gauchers Associations 5th London to Cambridge Charity bike ride on Sunday 7th September is fast approaching and plans are being finalised.  We are looking for volunteers for motorcycle assistance for the day. Can …

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  • velaglucerase alfa (VPRIV) - Wales

    7 August 2014

    The Association is pleased to announce  velaglucerase alfa (VPRIV®) has been approved as a recommended treatment for Gaucher Disease for use within NHS Wales and within three months of Ministerial approval will be routinely available in …

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  • International Gaucher Day 2014

    19 June 2014

    We would like to invite you to celebrate the first ever International Gaucher Day (IGD) by organising or hosting a coffee morning at home or at work with friends, family and
    colleagues on Saturday 26th July.

    IGD is the brainchild of the …

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  • Joint proposal to facilitate clinical investigation of new medicines for Gaucher disease in children

    15 May 2014

    The European Medicines Agency and US Food and Drug Administration release joint proposal to facilitate clinical investigation of new medicines for Gaucher disease in children. The UK Gauchers Association will make a formal response to this …

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  • Dr Derralynn Hughes talks on 'Newer Manifestations of Gaucher Disease

    18 March 2014

    Dr Derralynn Hughes talks on 'Newer Manifestations of Gaucher Disease
     
    The Gauchers Association are delighted to bring you a recording of the second WebEX presented by Dr Derralynn Hughes from the Royal Free Hospital, on Newer …

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  • Research Nurse Position at Cambridge

    10 March 2014

    A position has arisen in the Department of Medicine at the University of Cambridge for an experienced and highly motivated research nurse to join their team.  Click here for further information and to apply online.

  • Rare Disease Day 2014

    7 March 2014

    The Gauchers Association was pleased to be invited to take part in the publication entitled Rare Diseases distributed within The Independent newspaper on 28th February 2014, in the hope of raising awareness on Rare Disease day.

    Please click …

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  • WebEx Register NOW!

    25 February 2014

    Following on from the cancellation of our second WebEx event last October; this has now been rescheduled for Monday 17th March at 7.30pm

    Duration – 7.30pm to 8.30pm (to include a Q&A session)

    Presenter – Dr Derralynn …

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