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Promoting awareness, pioneering research and providing support and information for those affected by Gaucher disease.


Telephone: 01453 549231

In the News

  • WebEx Register NOW!

    25 February 2014

    Following on from the cancellation of our second WebEx event last October; this has now been rescheduled for Monday 17th March at 7.30pm

    Duration – 7.30pm to 8.30pm (to include a Q&A session)

    Presenter – Dr Derralynn …

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  • Statement from Healthcare at Home regarding homecare services

    17 January 2014

    Over the past few months, Healthcare at Home has experienced a period of significant disruption and backlog of deliveries due to a substantial and unexpected rise in demand for homecare services. This has caused inconvenience, and in some …

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  • Seasons Greetings

    20 December 2013

    The Gauchers Association would like to take this opportunity of wishing you Seasonal Greetings and very best wishes for 2014.  We should also like to inform you that the office will be closing from 4pm on Friday 20th December and will …

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  • Professor Ed Wraith Memorial Meeting 2014

    2 December 2013

    Professor Ed Wraith Memorial Meeting

    5th April 2014 The Point, Lancashire Cricket Club, Manchester

    The Ed Wraith Memorial Meeting on Lysosomal Diseases is planned as an inclusive and educational event to bring together and educate …

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  • 6th nGD Family Conference

    11 November 2013

    Following on from our successful 6th nGD family conference this weekend, we would like to send our thanks to everybody who attended on Saturday and a huge congratulations to the type III girls; Saphia, Maddie, Sara Khan, Sara pickton, Nadia and …

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  • Ride London 100 - 2014

    1 November 2013

    The Gauchers Association is pleased to announce they have secured Golden Bond places for the Prudential Ride London 100 for 2014, 2015 & 2016. If you are interested in supporting us through this event please contact Sarah on

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  • Second WebEx Seminar Book NOW!

    10 October 2013

    Following on from our first WebEx Seminar held in May 2013 hosted by Professor Timothy Cox, please contact Sarah on or 01453 549231 for details of the Gauchers Association’s second WebEx Seminar
    to be held on

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  • 2014 London Marathon

    27 September 2013

    Have you missed out on the Ballot for the Virgin London Marathon on 13th April 2014?  Would you or maybe you know somebody who would like to take part and support the Gauchers Association; we still have Golden Bond places available, numbers …

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  • Listen NOW! If you missed first WebEx

    6 June 2013

    Following on from the success of The Associations first ever WebEx event, very kindly presented by Professor Timothy Cox on the recently announce national research study to predict clinical outcomes and responses to treatment in Gaucher …

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  • ABPI ruling regarding Shire press release

    24 May 2013

    In June 2012 Shire issued a press release with the results of a head to head trial between VPRIV (Shire Human Genetics) and Cerezyme (Genzyme-Sanofi) and the effect that each had on Gaucher related bone disease.

    In August 2012, we posted the …

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