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Promoting awareness, pioneering research and providing support and information for those affected by Gaucher disease.

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Telephone: 01453 549231
Email: ga@gaucher.org.uk

In the News

  • Empathy Forum

    10 May 2013

    We have been asked to share the details of a up and coming project involving all young patients and the European Patients Forum (EPF).  We should like to encourage all young people to participate where possible and feel the Gaucher community …

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  • 2012 Alan Gordon Memorial Award

    22 March 2013

    The Gauchers Association is pleased to announce the winner of the 2012 Alan Gordon Memorial Award to the Lysosomal Storage Disorder Clinical Nurse Specialist Team at Great Ormond Street Hospital for their work in supporting the Type III girls …

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  • Rare Disease Day

    4 March 2013

    The Gauchers Association was pleased to be invited to take part in the publication entitled Rare Diseases distributed within The Independent newspaper on 28th February 2013, in the hope of raising awareness on Rare Disease day.

    Please find …

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  • Genzyme Announces Positive New Data from Two Phase 3 Studies for Oral Eliglustat Tartrate for Gaucher Disease

    19 February 2013

    CAMBRIDGE, Mass. – Genzyme, a Sanofi company, announced positive new data from the Phase 3 ENGAGE and ENCORE studies of eliglustat tartrate, its investigational oral therapy for Gaucher disease type 1. The results from the ENGAGE study were …

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  • Seasonal Greetings and Christmas opening hours

    19 December 2012

    The Gauchers Association would like to take this opportunity of wishing you Seasonal Greetings and very best wishes for 2013.  We should also like to inform you that the office will be closing from 4pm on Friday 21st December and will …

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  • Product Alert for Gaucher Patients and Families

    14 December 2012

    Dear all,

    We have been alerted to the existence of another pharmaceutical product called Zavesca that is causing some confusion amongst Gaucher patients throughout the world.  The product, whose packaging is almost identical to that of …

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  • Gaucher Disease scoops Medical Research Grant

    13 December 2012

    In December 2011, the Medical Research Council (MRC) announced a £60m four-year investment in a Stratified Medicine initiative. Professor Timothy Cox along with the UK eight specialist LSD centres submitted an application and we are …

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  • Genzyme Gaucher Generation Program Awards 2012

    3 December 2012

    Genzyme Honors Innovation in Gaucher Disease Research through Its 2012 Gaucher Generation Program Awards

     

    Genzyme, a Sanofi company announced the recipients of the 2012 Gaucher Generation Program awards, an annual program in …

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  • European Commission denies Taliglucerase (Elelyso) market approval for Type 1 Gaucher Disease

    7 November 2012

    On 3 July 2012, the Committee for Medicinal Products for Human Use (CHMP) recommended the refusal of a marketing authorisation for the medicinal product Elelyso (manufactured by Protalix Biotherapeutics, Israel and marketed outside of Israel by …

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  • The National Collaborative Study for Lysosomal Storage Disorders (NCS-LSD)

    6 November 2012

    In 2005, the Peninsula Medical School, in collaboration with the Specialist Treatment Centres for Lysosomal Storage Disorders in England, proposed to examine the effectiveness and associated costs of Enzyme Replacement Therapies for the treatment …

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