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Promoting awareness, pioneering research and providing support and information for those affected by Gaucher disease.


Telephone: 01453 549231

In the News

  • Professor Ed Wraith Memorial Meeting 2014

    2 December 2013

    Professor Ed Wraith Memorial Meeting

    5th April 2014 The Point, Lancashire Cricket Club, Manchester

    The Ed Wraith Memorial Meeting on Lysosomal Diseases is planned as an inclusive and educational event to bring together and educate …

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  • 6th nGD Family Conference

    11 November 2013

    Following on from our successful 6th nGD family conference this weekend, we would like to send our thanks to everybody who attended on Saturday and a huge congratulations to the type III girls; Saphia, Maddie, Sara Khan, Sara pickton, Nadia and …

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  • Ride London 100 - 2014

    1 November 2013

    The Gauchers Association is pleased to announce they have secured Golden Bond places for the Prudential Ride London 100 for 2014, 2015 & 2016. If you are interested in supporting us through this event please contact Sarah on

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  • Second WebEx Seminar Book NOW!

    10 October 2013

    Following on from our first WebEx Seminar held in May 2013 hosted by Professor Timothy Cox, please contact Sarah on or 01453 549231 for details of the Gauchers Association’s second WebEx Seminar
    to be held on

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  • 2014 London Marathon

    27 September 2013

    Have you missed out on the Ballot for the Virgin London Marathon on 13th April 2014?  Would you or maybe you know somebody who would like to take part and support the Gauchers Association; we still have Golden Bond places available, numbers …

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  • Listen NOW! If you missed first WebEx

    6 June 2013

    Following on from the success of The Associations first ever WebEx event, very kindly presented by Professor Timothy Cox on the recently announce national research study to predict clinical outcomes and responses to treatment in Gaucher …

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  • ABPI ruling regarding Shire press release

    24 May 2013

    In June 2012 Shire issued a press release with the results of a head to head trial between VPRIV (Shire Human Genetics) and Cerezyme (Genzyme-Sanofi) and the effect that each had on Gaucher related bone disease.

    In August 2012, we posted the …

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  • Book your WebEx NOW!

    13 May 2013

    The Gauchers Association are pleased to announce they are holding their first WebEx on Monday 20th May at 7.30pm, hosted by Professor Timothy Cox. To register for this event click here

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  • Empathy Forum

    10 May 2013

    We have been asked to share the details of a up and coming project involving all young patients and the European Patients Forum (EPF).  We should like to encourage all young people to participate where possible and feel the Gaucher community …

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  • 2012 Alan Gordon Memorial Award

    22 March 2013

    The Gauchers Association is pleased to announce the winner of the 2012 Alan Gordon Memorial Award to the Lysosomal Storage Disorder Clinical Nurse Specialist Team at Great Ormond Street Hospital for their work in supporting the Type III girls …

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