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Promoting awareness, pioneering research and providing support and information for those affected by Gaucher disease.


Telephone: 01453 549231

In the News

  • Expression of Hope III

    17 September 2014

    Genzyme a Sanofi company have recently announced the launch of their “Expression of Hope III” Program to Build Awareness of Lysosomal Storage Disorders Through Works of Art

    Click below for more information on this exciting program

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  • Cerdelga update

    17 September 2014

    Following the Food and Drug Administration (FDA) approval of Cerdelga as an oral treatment for certain adult Gaucher disease type 1 patients in August, press reports suggest that Genzyme has set a price for the US patients at $310,250 a year, see …

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  • British London 10k Run 2015

    16 September 2014

    Are you looking for your next sporting challenge? The Association have secured six places for the British London 10k run on Sunday 12th July 2015. If you are interested in supporting us by taking part in this ever growing event please contact …

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