Rare Disease Day 2019

Rare Disease Day 28 February 2019

Bridging health and social care

The 12th edition of Rare Disease Day will focus on bridging the gaps in the coordination between medical, social and support services in order to tackle the challenges that people living with a rare disease and their families around the world face every day. 

Rare Disease Day 2019 is an opportunity to be part of a global call on policy makers, healthcare professsionals and care services to better coordinate all aspects of care for people living witha rare disease.

The theme, 'Bridging health and social care' guides patient organisations and all Rare Disease Day participants around the world in their advocacy activities for Rare Disease Day 2019.

In addition, due to it's success in 2018, the #ShowYourRare social media campaign continues for 2019.  People around the world will pain their faces and show their rare for Rare Disease Day using the #ShowYourRare

We will be sharing lots of information througout the day on our Facebook and Twitter page highlighting our vital advocacy service, please look out for these, like and share to help us raise the profile of the Association and its link with Rare Disease Day.

If you would like to find out more about Rare Disease Day, please visit their website by clicking here Where there are lots of materials you can download; i.e. social media profile pictures, posters and information flyers