Type 1 Gaucher Disease Education Days 2020


Amid concerns about the spread of Coronavirus (Covid-19), the Association has taken the difficult decision to postpone the upcoming Type 1 Education Days. We are very sorry for any inconvenience caused by this decision, however maintaining patient health and safety is paramount.

We are hoping to reschedule these events to be held later this year and will keep you updated about any planning developments. 

If you have any questions in the meantime, please email Maddie maddie@gaucher.org.uk or call: 07444 187154


Following on from our survey circulated recently we are delighted to announce confirmed dates and locations for our Type 1 Education Days.

Topics covered will include, Cerdelga and the work of the Gauchers Association. There will also be an opportunity to gather information about RAPSODI and meet Claire Bickley, our Patient and Family Support Worker who will be on hand to answer any questions related to social support concerns such as benefits, housing, applying for grants, liaising with employers and care in later life.

Dates and Venues

Birmingham - Friday 20th March 

Macdonald Burlington Hotel, Burlington Arcade, 126 New Street, Birmingham, B2 4JQ

Bristol – Thursday 2nd April 2020

Bristol Marriott City Centre, 2 Lower Castle Street, Bristol, BS1 3AD

London – Saturday 25th April 2020

Mercure Paddington,144 Praed Street, Paddington, London, W2 1HU

Newcastle – Friday 1st May 2020

Crowne Plaza Newcastle - Stephenson Quarter, Hawthorn Square, Forth St, Newcastle upon Tyne, NE1 3SA

There is limited availability for each event; you can download the booking form here  please complete and return to Maddie Collin by email maddie@gaucher.org.uk  or post to The Gauchers Association, 8 Silver Street, Dursley, Gloucestershire, GL11 4ND

Some frequently asked questions:

Question: Can I bring a family member/friend along with me?

Answer: Of course; however, this is usually limited to one guest per patient so RSVP as soon as possible to guarantee your space. If you would like to bring two guests, then please contact me. Each request will be assessed on an individual basis.  

Question: Can you help me with travel advice?

Answer: Yes. If you have any questions relating to travel, please get in touch and I will do my best to help.