In the news
Can you help to support trainees in inherited metabolic disease and lysosomal storage disorders?
COVID-19 has brought challenges and change for all of us, affecting every aspect of our lives, including the way we access and interact with our healt...
23 June 2020
May 2020 News Bulletin
May News Bulletin - Click here Here is all the latest news by reading and sharing our March news bulletin. If you have a story to...
22 May 2020
UK Adult LSD latest update
The UK adult LSD centres have all been working incredibly hard supporting and answering questions from patients and have produced a very useful advice...
24 April 2020
NHS England and high risk letters
We are aware that many of you may have received a text message or a letter from NHS England stating that due to being a Gaucher patient you are at hig...
08 April 2020
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