In the news
September News Bulletin
September News Bulletin - Click here Here is all the latest news by reading and sharing our September news bulletin. If you have a sto...
25 September 2020
July 2020 News Bulletin
July News Bulletin - Click here Here is all the latest news by reading and sharing our July news bulletin. If you have a story to shar...
24 July 2020
UK LSD Collaborative Survey 2020
If you or your family member(s) receive care and services linked to an ultra-rare disease, such as Gaucher disease, we need your help. To support c...
10 July 2020
Can you help to support trainees in inherited metabolic disease and lysosomal storage disorders?
COVID-19 has brought challenges and change for all of us, affecting every aspect of our lives, including the way we access and interact with our healt...
23 June 2020
Click here to view News Archive