The Gauchers Association is:
A Registered UK Charity, Registered Charity Number: 1095657
A Registered Company Limited by Guarantee in England and Wales Number 446823.
The Registered Office: 86-90 Paul Street, London EC2A 4NE
The Gauchers Association is managed by a Board of Directors consisting of Gaucher patients, their parents and their relatives. The Directors and Executive members volunteer their time to achieve the Aims of the Group. Find out more about our Directors and Team.
The Group also has a number of distinguished Patrons who lend their support to our work.
The administration office of the Gauchers Association is based at:
8 Silver Street
Gloucestershire GL11 4ND
Tel/Fax 00 (44) 1453 549231
Our Operations Manager is Sarah Allard who manages the day-to-day activities of the charity.
The focus of our work is:
• To provide information about Gaucher disease and keep families and medical advisers up to date with latest research developments.
• To encourage the availability of treatment including enzyme replacement therapy
• To keep families in touch for support
• To actively promote medical research into Gaucher disease.
The Gauchers Association were founder members of the International Gaucher Alliance (IGA) - formally known as the European Gaucher Alliance (EGA) which now has 48 Member Associations. You can learn more about the IGA by clicking here.
In addition to providing support from the Gauchers Association office, we publish information leaflets and two newsletters each year. The Newsletter is circulated to 1,300 families, friends, donors and professionals worldwide.
The Group relies solely on membership fees, voluntary donations, fundraising events and charitable grants for its income. The Gauchers Association receives financial contributions in the forms of unrestricted grants towards its annual work programme from the pharmaceutical industry.
The Gauchers Association adheres to the provisions of the EGA Code of Practice on Relationships with the Pharmaceutical Industry
View our Governing Documents and Reports