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Gaucher Association Logo

Promoting awareness, pioneering research and providing support and information for those affected by Gaucher disease.

About Us

The Gauchers Association is:

A Registered UK Charity, Registered Charity Number: 1095657 

A Registered Company Limited by Guarantee in England and Wales Number 446823.

The Registered Office: 8 Silver Street, Dursley, Gloucestershire, GL11 4ND

The Gauchers Association is managed by a Board of Directors consisting of Gaucher patients, their parents and their relatives. The Directors and Executive members volunteer their time to achieve the Aims of the Group. Find out more about our Directors and Team.

The Group also has a number of distinguished Patrons who lend their support to our work.

The administration office of the Gauchers Association is based at:

8 Silver Street
Dursley
Gloucestershire GL11 4ND

Tel/Fax 00 (44) 1453 549231
Email:  ga@gaucher.org.uk

Our Chief Executive is Tanya Collin-Histed who manages the day-to-day activities of the charity.

The focus of our work is:

•    To provide information about Gaucher disease and keep families and medical advisers up to date with latest research developments.

•    To encourage the availability of treatment including enzyme replacement therapy

•    To keep families in touch for support

•    To actively promote medical research into Gaucher disease.

The Gauchers Association were founder members of the European Gaucher Alliance (EGA) which now has a membership of 43 countries. You can learn more about the EGA by clicking here.

In addition to providing support from the Gauchers Association office, we publish information leaflets and two newsletters each year. The Newsletter is circulated to 1,300 families, friends, donors and professionals worldwide.

Funding
The Group relies solely on membership fees, voluntary donations, fundraising events and charitable grants for its income. The Gauchers Association receives financial contributions in the forms of unrestricted grants towards its annual work programme from the pharmaceutical industry.

The Gauchers Association adheres to the provisions of the EGA Code of Practice on Relationships with the Pharmaceutical Industry

View our Governing Documents and Reports

Annual Report 2014/15

Directors Report 2014/15

Annual Report 2013/14

Directors Report 2013/14

Annual Report 2012/13