Since 1991, The Gauchers Association has been active in promoting awareness and research, providing general and specific information - including keeping our members up-to-date on the latest research developments, and perhaps most importantly, establishing a support network for those affected by Gaucher disease.
Most of our members are in the UK and Ireland and we are a registered charity that relies solely on fundraising and by voluntary donations. The Association aims to:
•Provide information about Gaucher disease and keep families and medical advisers up to date with the latest developments.
•Encourage the availability of treatment including enzyme replacement therapy.
•Keep families in touch for support.
•Actively promote medical research into Gaucher disease.