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Promoting awareness, pioneering research and providing support and information for those affected by Gaucher disease.

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Telephone: 01453 549231
Email: ga@gaucher.org.uk

In the News

  • Rare Disease Day 2015

    13 February 2015

    Rare Disease Day 2015 is on 28th February. This is a day to raise awareness among the general public and decision makers about rare diseases and their impact. If you would like to get involved check out Global Genes social media suggestions

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  • Prudential Ride London

    5 February 2015

    Have you been unsuccessful in this year's ballot for the Prudential Ride London?  We have spaces available, why not be part of team Gaucher on Sunday 2nd August!  If you are interested please contact Sarah on

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  • 2015 Golf Day

    30 January 2015

    The Gauchers Association are pleased to announce they will once again be hosting their fabulous golf day on Wednesday 20th May 2015 at Dyrham Park Country Club.

    The day will start at 8.30 with form of play being Alliance Stableford (Shotgun …

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  • European Commission grants marketing approval for Cerdelga (Eliglustat) capsules

    26 January 2015

    The Gauchers Association are pleased to announce that the European Commission (EC) has granted marketing approval for Cerdelga (Eliglustat) capsules, an oral therapy indicated in the European Union for the long term treatment of adult patients …

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  • Seasonal Greetings

    19 December 2014

    The Gauchers Association would like to take this opportunity to wish all our members, families, friends and all our collaborative partners Seasonal Greetings and best wishes for the New Year.

    We should like to inform you that the office will …

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  • Alan Gordon Memorial Award 2015

    5 December 2014

    The Association is now inviting nominations for the 8th Alan Gordon Memorial Award.  If you feel someone, whether a doctor, researcher, professional or layman, or a particular group of people warrants recognition please submit your …

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  • Great North Run 2015

    31 October 2014

    The Association is pleased to announce they have secured 5 Golden Bond places for the 2015 Great North Run on Sunday 13th September starting in Newcastle and finishing in South Shields.  If you are interested in taking part in this iconic …

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  • Expression of Hope III

    17 September 2014

    Genzyme a Sanofi company have recently announced the launch of their “Expression of Hope III” Program to Build Awareness of Lysosomal Storage Disorders Through Works of Art

    Click below for more information on this exciting program

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  • Cerdelga update

    17 September 2014

    Following the Food and Drug Administration (FDA) approval of Cerdelga as an oral treatment for certain adult Gaucher disease type 1 patients in August, press reports suggest that Genzyme has set a price for the US patients at $310,250 a year, see …

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  • British London 10k Run 2015

    16 September 2014

    Are you looking for your next sporting challenge? The Association have secured six places for the British London 10k run on Sunday 12th July 2015. If you are interested in supporting us by taking part in this ever growing event please contact …

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