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Promoting awareness, pioneering research and providing support and information for those affected by Gaucher disease.

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Birmingham Children's Hospital Family Rare Disease Day

25 January 2016

On Saturday 27th February, Birmingham Children's Hospital are holding a family day for all children and young people with a Rare Disease. This is a Trust wide event; some metabolic children attended the last day and enjoyed it. The day is aimed at a lot of activities for the children, including clowns, animals, face painting, henna, colouring, story time etc. There are also formal lectures including transition, palliation, learning from other families and some less formal break out sessions for Spiritual care, Psychology etc.

If you are interested in attending this event please confirm your attendance by emailing Kerys.Grainger@bch.nhs.uk