International Gaucher Day was launched by the EGA in 2014 and is celebrated annually on 1st October to raise awareness of Gaucher disease.
The theme for 2018 is Rare Stars, we will be sharing some videos of Rare Stars throughout the lead up to the day but would love you to get involved.
Do you have a Rare Star in your life? We would love to highlight your Rare Star, please help us by getting involved and telling us who is your Rare Star; this can be anybody who has made a difference to your Gaucher journey; for example, not just a member of your medical team, doctor, nurse it could be a family member, teacher or best friend.
Do send your Rare Stars via email to Sarah Allard on firstname.lastname@example.org, including an image would be great for us to share on IGD on our social media platforms, website and October news bulletin.