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Patient and Family Support Worker

We are delighted to introduce our new Patient and Family Support Worker, Claire Bickley who started working for the Association this week. Claire says

'Hello, I would like to introduce myself as the new Patient and Family Support Worker at the Gauchers Association.

I have a background in family support both in the UK and New Zealand, working for the past 6 years with seriously ill children and their families in London.

I am here to offer a wide range of emotional and practical support to Gaucher patients and their families. This could be support with benefit and housing applications, contacting local community services, applying for grants, organising home care, attending appointments and liaising with schools and colleges. I am also here as a friendly ear for members to talk through any concerns and worries.

My main days of work will be Tuesdays, Wednesdays and Thursdays, I am contactable by phone on 01453 549 231 or 07795 192 311 or via email on

I am happy to talk on the phone or to meet you at the hospital, your home or a local coffee shop.

Please do get in touch, I look forward to hearing from you'.