In the News
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Shire Submits European Marketing Authorization
25 November 2009
Shire Submits European Marketing Authorization Application (MAA) for velaglucerase alfa for the Treatment of Type 1 Gaucher Disease Committee for Medi...
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Force Majeure: Therapeutic measures in response to restricted supply of imiglucerase (Cerezyme) for patients with Gaucher disease
22 October 2009
Based on the findings of the meeting of the EWGGD on Thursday 10th September in Bad Honnef, Germany, this paper includes a position statement based on...
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Cerezyme Emergency Treatment Program
29 September 2009
Dear Friends, I am writing to inform you of some very important developments in the management of the shortage of Cerezyme, which is so severely af...
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Cerezyme Supply Update
19 August 2009
Dear Friends, I am writing to you, at what is a very difficult time for the global Gaucher community, to provide an update on the supply of Cerezyme...
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Shire files treatment protocol
08 July 2009
Shire has filed a treatment protocol for velaglucerase alfa for Gaucher Disease Lexington, Massachusetts, US – July 6th, 2009 – Shire plc (LSE: SHP...
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Protalix Approached by the FDA
05 July 2009
Protalix Approached by the FDA to Consider Submitting a Treatment Protocol for the Use of prGCD in Patients with Gaucher Disease Allowing Expanded Acc...
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Cerezyme Supply
17 June 2009
Genzyme Temporarily Interrupts Production at Allston Plant Genzyme announce temporary closure of Boston manufacturing plant : Read Genzyme p...
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Small Grant for Type 2 Research
30 April 2009
The Gauchers Association has awarded a small grant to The Royal Free Hospital, London to purchase a batch of viral vectors as part of their research i...
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Protalix Switch over Trial
23 March 2009
Protalix BioTherapeutics Announces First Patient Enrolled in Open-Label, Switchover Trial of prGCD for the Treatment of Gaucher Disease Protalix Bi...
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Addenbrookes Homecare
13 February 2009
Addenbrookes is pleased to announce that it has awarded the contract for the provision of homecare for patients with Gaucher disease jointly to Careo...
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New Fundraising Packs
12 January 2009
New fundraising packs – We are pleased to announce the availability of our brand-new fundraising packs. They are available free to all of our members...
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Recieve e-mail alerts.
12 January 2009
Receive e-mail alerts – Sign up for regular news alerts delivered straight to your inbox. Click on the RSS link and as soon as the site is updated, yo...
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New Gauchers News online
12 January 2009
Gaucher News online – Our January 2009 newsletter is now available in three formats – hard copy, e-mail, or as a .pdf file. Choose your preferred opti...
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