In the News
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Seasons Greetings
20 December 2013
The Gauchers Association would like to take this opportunity of wishing you Seasonal Greetings and very best wishes for 2014. We should also...
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Professor Ed Wraith Memorial Meeting 2014
02 December 2013
Professor Ed Wraith Memorial Meeting 5th April 2014 The Point, Lancashire Cricket Club, Manchester The Ed Wraith Memorial Meeting on Lysoso...
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6th nGD Family Conference
11 November 2013
Following on from our successful 6th nGD family conference this weekend, we would like to send our thanks to everybody who attended on Saturday and...
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Ride London 100 - 2014
01 November 2013
The Gauchers Association is pleased to announce they have secured Golden Bond places for the Prudential Ride London 100 for 2014, 2015 & 2016....
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Second WebEx Seminar Book NOW!
10 October 2013
Following on from our first WebEx Seminar held in May 2013 hosted by Professor Timothy Cox, please contact Sarah on sarah@gaucher.org.uk or 01...
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2014 London Marathon
27 September 2013
Have you missed out on the Ballot for the Virgin London Marathon on 13th April 2014? Would you or maybe you know somebody who would like to t...
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Listen NOW! If you missed first WebEx
06 June 2013
Following on from the success of The Associations first ever WebEx event, very kindly presented by Professor Timothy Cox on the recently announce n...
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ABPI ruling regarding Shire press release
24 May 2013
In June 2012 Shire issued a press release with the results of a head to head trial between VPRIV (Shire Human Genetics) and Cerezyme (Genzyme-Sanof...
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Book your WebEx NOW!
13 May 2013
The Gauchers Association are pleased to announce they are holding their first WebEx on Monday 20th May at 7.30pm, hosted by Professor Timothy Cox.&...
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Empathy Forum
10 May 2013
We have been asked to share the details of a up and coming project involving all young patients and the European Patients Forum (EPF). We sho...
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2012 Alan Gordon Memorial Award
22 March 2013
The Gauchers Association is pleased to announce the winner of the 2012 Alan Gordon Memorial Award to the Lysosomal Storage Disorder Clinical Nurse...
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Rare Disease Day
04 March 2013
The Gauchers Association was pleased to be invited to take part in the publication entitled Rare Diseases distributed within The Independent newspa...
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New Patient and Family Support Worker
26 February 2013
The Gauchers Association is pleased to welcome on board Gill Glover, our new Patient and Family Support Worker. Gill’s role will be to...
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Genzyme Announces Positive New Data from Two Phase 3 Studies for Oral Eliglustat Tartrate for Gaucher Disease
19 February 2013
CAMBRIDGE, Mass. – Genzyme, a Sanofi company, announced positive new data from the Phase 3 ENGAGE and ENCORE studies of eliglustat tartrate,...
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