In the News
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Season's Greetings 2019
20 December 2019
The office will be closed from 4pm on Friday 20th December and will reopen on Mpnday 6th January 2020 at 9am The Gauchers Associati...
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December News Bulletin
18 December 2019
Click here to read all the latest news and updates from the Gauchers Association Our newsletter will be automatically emailed to you if you su...
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Innovative Medicines Fund
26 November 2019
Boris Johnson has announced that, if re-elected, the Conservatives would launch a £500m fund to give patients “quicker access to the most...
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An Insight from Gaucher patients aged 45 years and over in the UK
06 November 2019
Thank you to everyone who participated in our recent research project into Gaucher patients experiences aged 45 and over in the UK; the results of whi...
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October 2019 News Bulletin
02 October 2019
Click here to read all the latest news and updates from the Gauchers Association Our newsletter will be automatically emailed to you if you subscri...
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Published paper on wearable technology
06 September 2019
We are delighted to share the published paper on experiences measuring disease activity and patient experience remotely using wearable devices an...
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Patient and Family Support Worker
05 September 2019
We are delighted to introduce our new Patient and Family Support Worker, Claire Bickley who started working for the Association this week. Claire says...
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July 2019 News Bulletin
25 July 2019
Click here to read all the latest news and updates from the Gauchers Association Our newsletter will be automatically emailed to you if you su...
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Rapsodi Public Engagement Meeting
10 July 2019
For those of you who were unable to attend the recent Rapsodi Public Engagement meeting hosted in London we are very pleased to be able to share their...
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An update on the future of the Gauchers Association from Jane Jones, CEO and Dan Brown, Chairman
17 June 2019
Dear Friends A message from our Chief Executive, Jane Jones: It is now a year since my appointment as Chief Executive of the Gauchers Associatio...
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May News Bulletin
28 May 2019
Click here to read all the latest news and updates from the Gauchers Association Our newsletter will be automatically emailed to you if you subscri...
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April News Bulletin
24 April 2019
Click here to read all the latest news from the Gauchers Association. Our newsletter will be automatically emailed to you if you subscribe to our n...
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March News Bulletin
28 March 2019
Click here to read all the latest news and updates from the Gauchers Association. Our newsletter will automatically be emailed to you if you s...
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Maddie Collin speaks out over Brexit concerns
18 March 2019
The Gauchers Association Trustee and Gaucher patient Maddie Collins has spoken out about her Brexit concerns for the UK Rare Disease Patient Community...
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Update on Gene Therapy
27 February 2019
The Gauchers Association is pleased to provide an update on the progress of a potential Gene Therapy targeting treatment for all types of Gaucher dise...
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February News Bulletin
22 February 2019
Click here to read all the latest news and updates from the Gauchers Association. Our newsletter will automatically be emailed to you if you subscr...
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