In the News
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Season's Greetings 2017
15 December 2017
The Gauchers Association would like to wish all our members, families, friends and collaborative partners Seasonal Greetings and thank you to every...
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Scottish Medicines Agency (SMC) says 'YES'
11 December 2017
Today, the SMC announced that Cerdelga is recommended within its marketing authorisation for treating type I Gaucher disease, that is, for long-ter...
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Access to Medicines in NHS Wales
11 December 2017
All Wales Therapeutics & Toxicology Centre (AWTTC) have produced a patient information video to help people understand how medicines can b...
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Trustees Week 17th November
17 November 2017
Thank you to our trustees On behalf of the whole Gaucher community I should like to end Trustees Week by saying a HUGE thank you to all our won...
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Trustees Week 16th November
16 November 2017
I was diagnosed with Gaucher Disease when I was 26. Like most newly diagnosed patients my initial emotions were fear and apprehension and I focused...
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Trustees Week 15th November
15 November 2017
The Gauchers Association is the only registered UK charity providing support to individuals and families affected by Gaucher Disease, acting a...
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Trustees Week 14th November
14 November 2017
Trustees are the people in charge of a charity. They help to make the UK the sixth most giving country in the world. They play a vital role, volunt...
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Trustees Week 14th November
14 November 2017
The Gauchers Association is the only UK registered charity providing support to individuals and families affected by Gaucher disease, acting as the...
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Trustees Week 13th November
13 November 2017
Welcome to Trustees Week. There are approximately 196,000 charities in the whole of the UK and just over 1 million trustees. Who are our trustees?...
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Trustees Week
10 November 2017
Next week is the start of Trustees week (13-17 November). This is an annual event to showcase the great work that trustees do and highlight the opp...
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October update
26 October 2017
Dr Patrick Deegan and Clinical Nurse Specialist Elizabeth Morris from Addbenbrooke's Hospital, Cambridge have very kindly answered some questio...
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Jeans for Genes Day
08 August 2017
Jeans for Genes is the annual fundraising campaign for Genetic Disorders UK, the national charity that supports individuals and families affected b...
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Jeans for Genes Day
08 August 2017
Jeans for Genes is the annual fundraising campaign for Genetic Disorders UK, the national charity that supports individuals an families affected by...
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Drugs Industry to sue over price cap on NHS medicines
11 July 2017
The pharmaceutical industry is planning to sue the drugs watchdog over the price cap on medicines. The Association of the British Ph...
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Final Place for The Great North Run
21 June 2017
FINAL PLACE....... We would love to fill the final place that we have available for The Great North Run. This iconic event is taking place on 10th...
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NICE says ‘YES’ to NHS paying for Cerdelga for adult patients with Type 1 Gaucher Disease
31 May 2017
Today, the National Institute for Health and Care Excellence (NICE) announced that Cerdelga is recommended within its marketing authorisation for t...
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PRESS RELEASE - NICE and NHS England
28 March 2017
In late October 2016 NHS England and NICE launched a 12-week consultation on changes to the arrangements for evaluating and funding drugs and other...
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Clinical Trial for Gaucher Disease Type 3
21 February 2017
Sanofi Genzyme is investigating an orally administered substrate reduction therapy in Gaucher disease type 3 as part of the 2-part LEAP clinical re...
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Gauchers Association charity cycle ride 2017
17 February 2017
Back by popular demand with a brand new revised 60 (or 40) mile cicular route. Sunday 21st May 2017 - Online registration NOW OPEN! R...
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Rare Disease Day 2017
10 February 2017
The Rare Disease Day 2017 slogan is 'With research, possibilities are limitless.' On 28th February 2017, the tenth edition of Rare Dise...
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Clinical Trial ALERT!!!
03 January 2017
Genzyme, a Sanofi Company have launched a phase 2 clinical trial in adults (18 years and older) with Type 3 Gaucher disease. This 52-week two-part...
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